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People with developmental disabilities seeing Medicaid coverage lapse more often

Aug 08, 2025 | 11:00 pm ET By Danielle J. Brown An increasing number of people with developmental disabilities are falling through the cracks of Medicaid, going months without health care coverage because the state can’t keep pace with new applications and wrongful termination appeals. Concrete numbers are hard to come by, but providers and developmental…
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They don’t need Medicaid. But their kids do.

Kayla Jimenez, Madeline Mitchell July 19, 2025 Stacy Staggs’s 11-year-old daughter will never eat or breathe on her own. Five times a day, Staggs or a nurse feeds her daughter, Emma Staggs, doctor-prescribed formula through a feeding tube at home. The formula comes at $25 per bottle, amounting to $125 per day. The formula is…
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Trump Order Sparks Concerns About Forced Institutionalization

by Michelle Diament | August 1, 2025 A White House order calling for greater reliance on institutionalization threatens decades of precedent on disability rights, advocates are warning. The executive order issued late last month by President Donald Trump is aimed at addressing homelessness, but could have implications for people with disabilities more broadly, according to multiple disability advocacy…
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Feds investigate hospitals over religious exemptions from gender-affirming care

July 8, 2025 5:00 AM ET By Kate Wells The Trump administration has launched investigations into health systems in what legal experts say is an effort to allow providers to refuse care for transgender patients on religious or moral grounds. One of the most recent actions by the Department of Health and Human Services, launched in…
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HIV prevention drug hailed as a ‘breakthrough’ gets FDA approval

June 18, 2025 4:59 PM ET By Jonathan Lambert A drug with the potential to drastically curb the HIV epidemic just cleared its first regulatory hurdle. On Wednesday, the Food and Drug Administration approved lenacapavir for the prevention of HIV. Clinical trial data from last year suggest just two injections a year provide near-complete protection…
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Supreme Court clears way for states to kick Planned Parenthood out of Medicaid

Patients do not have legal standing to sue if a state denies their right to see their preferred medical provider, the court said in a 6-3 ruling. By Alice Miranda Ollstein, Josh Gerstein and Lauren Gardner Updated: 06/26/2025 01:22 PM EDT The Supreme Court on Thursday cleared the way for states to exclude Planned Parenthood from their Medicaid programs. In…
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People with disability are dying from cancers we can actually prevent, our study shows

Published: May 29, 2025 4:24pm EDT Authors People with disability are missing out on screening programs that could help detect cancer early, and after diagnosis, are less likely to survive, our study shows. Overall, this means people with disability are more likely to die from cancer than people without disability. We draw together evidence showing the…
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Experts Warn Of Decade-Long Setback After Trump Cuts HIV Vaccine Research

By Jennifer Lotito Jun 05, 2025, 01:07pm EDT It was a rare moment of bipartisan unity. Standing before a joint session of Congress in January 2019, President Donald Trump boldly pledged to eradicate a disease that claims one life every single minute: HIV/AIDS. “Scientific breakthroughs have brought a once-distant dream within reach,” Trump exclaimed. “My…
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Parents of kids with disabilities brace for new reality under Medicaid, education cuts

Cuts to Medicaid and the Department of Education could have detrimental impacts on keeping kids with complex medical needs healthy — and ensuring those same children have equitable access to education. By: Barbara Rodriguez, The 19th and Nadra Nittle, The 19th – May 8, 2025 2:28 pm Jolene Baxter’s daughter, Marlee, has overcome immense challenges in her first eight years…
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States try to revive Medicaid work requirements, worrying some low-income Americans

By Alexandra Olgin May 8, 2025 3:23 PM ET More than 70 million Americans who are low-income or disabled have health insurance paid for by the state and federal government called Medicaid. The main qualification currently is that you have to make below a certain income level. But there’s an idea that’s been popular with Republicans –…
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